Hand-drawn illustration of a stuffed teddy bear with purple wings and a black bow tie, standing against a dark background.

Honoring the Brothers Who Inspired Us.

Supporting Every Family Facing Batten Disease.

Our family learned that Batten Disease changes everything — but it doesn’t erase love, joy, or the moments that make a family.


We created Brothers With Batten’s to help other families find strength, connection, and community on their own Batten journey.

A purple logo featuring a globe made of interconnected lines and circles, with bold purple text to the right that reads "No One Battles Baten Alone."

Why We Do What We Do

We know what it feels like when Batten Disease enters a family — the fear, the love, and the strength you never expected to need. No one should walk that road alone. Brothers With Batten’s exists to bring families together, share support, and build a community rooted in connection, understanding, and hope.

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